دوره 16، شماره 2 - ( 12-1403 )                   جلد 16 شماره 2 صفحات 313-305 | برگشت به فهرست نسخه ها


XML English Abstract Print


Download citation:
BibTeX | RIS | EndNote | Medlars | ProCite | Reference Manager | RefWorks
Send citation to:

Davoudi M, Boostani R, Manzari Z S. Astonish yourself while worrying about another: Patients' reactions of HTLV-1-associated myelopathy/tropical spastic paraparesis diagnosis. Caspian J Intern Med 2025; 16 (2) :305-313
URL: http://caspjim.com/article-1-3529-fa.html
Astonish yourself while worrying about another: Patients' reactions of HTLV-1-associated myelopathy/tropical spastic paraparesis diagnosis. . 1403; 16 (2) :305-313

URL: http://caspjim.com/article-1-3529-fa.html


چکیده:   (108 مشاهده)

Background: This study aimed to explore the patients' reactions when HAM/TSP was diagnosed. This qualitative content analysis study was conducted on HAM/TSP patients referred to an HTLV-1 clinic in Mashhad, Iran.
Methods: We selected a purposive sample of 16 HAM/TSP patients meeting the inclusion criteria to participate in semi-structured interviews to explore their reactions and emotions when they first learned about their diagnosis. A qualitative content analysis was utilized with MAXQDA 2020 software.
Results: Four categories and 14 subcategories were extracted, summarized in the main concept "Astonish yourself while worrying about another." The categories included threatened mental health, fear of falling into the path of ambiguity and darkness, fears and conflicts of deciding to expose the disease, and the double stress of threatening the health of others."
Conclusion: HAM/TSP is an incurable and progressive disease with several physical complications. Its first diagnosis can also cause severe psychological damage to patients and profoundly affect the patient's social and family relationships. Therefore, it seems that education and health policies should integrate multidisciplinary teams to minimize the effects of HAM/TSP on the patients' quality of life.

 

متن کامل [PDF 529 kb]   (26 دریافت)    
نوع مطالعه: Original Article | موضوع مقاله: Neurology
دریافت: 1401/3/28 | پذیرش: 1401/6/19 | انتشار: 1404/1/1

ارسال نظر درباره این مقاله : نام کاربری یا پست الکترونیک شما:
CAPTCHA

بازنشر اطلاعات
Creative Commons License این مقاله تحت شرایط Creative Commons Attribution-NonCommercial 4.0 International License قابل بازنشر است.

کلیه حقوق این وب سایت متعلق به می باشد.

طراحی و برنامه نویسی : یکتاوب افزار شرق

© 2025 CC BY-NC 4.0 | Caspian Journal of Internal Medicine

Designed & Developed by : Yektaweb